Monday, December 17, 2012

AML: Update - Mostly quiet here

So I have been a little preoccupied with finishing some Christmas things which have kept me from writing.  Each year we use Shutterfly.com to create photobooks.  We have done this ever since Alivia was born.   I suppose that makes this the 8th installment. 

We give these books to family members as part of their Christmas presents.  They go over very well, but can be a lot of work to sort through all the pictures.  I managed to get them done and ordered last night.  So now what to do with my time?

It has been suggested that I might be getting out today.  Unfortunately, my doctor does rounds very late on Mondays.  So I sit and wait, somewhat impatiently. 

This round of chemo (Decogen) was pretty easy to handle.  No ill effects from the actual chemo.  My counts have stayed pretty consistent so far.   WBC hovers around .2 or .3 which is what it was when I came in.  Platelets are hovering about 16.  I've had to get red blood a few times. 

I had what started as a mild cold sore a few weeks ago (They have always been a problem since I was little).  Unfortunately, with no immune system or much healing ability this little guy made a big impression.  As it is now, it is healing, but it is painful.  I am generally getting a mix of Ativan, Oxy-IR and morphine in order to just fall asleep at night.  I am quite self conscious of it and am frustrated it will probably linger through Christmas and Christmas photos. 

They did modify my meds a bit.  I mentioned a bit back that they stopped all immune suppressants and steroids.  My meds now are mainly to boost my immune system.  Levequin (antibiotic),  Noxafil (antifungal) and Aciclovir (Antiviral).  In fact they have me on 20 of just the Aciclovir pills each day. 

I feel good though.  Things are squared away it seems.  I should be out today and hopefully things hold through the holiday.  We'll sort the rest out from there.  I just want to focus on Christmas and family now and making a few memories. 

1 comment:

  1. We have been thinking about you alot jon. Tried to get up to see you last weekend. No sitter for the boys. Lots of prayers being said. Merry Christmas to you and your family. Beth and Jamey Roush.

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