AML: Another Long Week

So a week ago with was feeling pretty well, but my White counts were not recovering as they should.  We started the Neupogen shots with the intent of jumpstarting my white count. It worked.  My white count went from .2 to over 2.0. 

However, I have once again lost my appetite and am having stomach and energy issues,  My blood work on Wed indicated my platelets and hemoglobin had dropped off significantly.  Since I was also struggling with energy, (I could barely walk 50 feet before having to sit down and catch my breath) they set me up for a blood infusion on Thursday.

The transfusion took about 6 hours.  I felt much better right away.  Unfortunately, my doctor called me today and said my platelets were low.  So we will be infusing platelets tomorrow (Sat).  I don't show any cancer in the blood, but they want to do another bone marrow on Monday.  So that is the plan for now.  The fact that all my counts have struggled to rise is of great concern.   It is unusual.  Unusual is not good; I like the familiar.

Because of the way I have felt, I missed both girls (Liv and Vaeh) school concerts.  Their church concert and Alivia's first basketball game.  It's great to be home, but frustrating to not be able to participate. 

We had some great help this week.  Brent, Tom, Ira and Andy, of course, all hung out with me various days to help me feel better.  Brent and Tom got the worst of it.    Clark, Natosha and the family kept me company and the kids fed one evening.  Then Stacy once again took Liv to her basketball practice.  We really appreciate the help even though I am home, I have not been able to do much. 

Last Christmas time Alivia really wanted Christmas lights.  I promised her we'd have lights next year.  Our angel, Stacy, once again helped here and had a bunch of friends come over this week and hang lights.  Liv was so excited to have her Christmas lights. 

I am most worried that the bone marrow results will mean we start chemo again right away, which would mean Christmas in the hospital.   I don't think anyone anywhere will have a pill that will make  me feel good about that.