Tuesday, May 1, 2012

AML: Day -3, Am I glowing?

Best thing of today.  Catheter came out at 7:00 this morning. 

A light breakfast and then radiation at 9:30.  This is a full body radiation. I sit in a chair  strapped in with little sensors to track how even the radiation is traveling through me.  I sit for 12 minutes getting nuked from one side, then they turn me around and hit me from the other side. 

The actual treatment is uneventful.  I fell asleep.  I am a good medium rare with they pull me out.  They tell me I'll get a little "sunburned" from the course. 
After the radiation and free from the IVs, I got a pass from the hospital.  So Andy and I went back to the transplant house and relaxed.  Some friends of Tom my Aunt Rogene's from Yankton stopped by.  He had a double lung transplant and they were in town for a checkup.  It was good to visit with them.  They are staying in the Gift of life house too. 

We had a late lunch and I headed back for the 2 dose of radiation.   Skins a little pinker.   I mentioned I was nervous about the radiation.  Not so much the actual treatments but the side effects are what I am worried about...

I did get sick to my stomach today.  I think it's mostly because of mild nausea, but the hiccups set me off.  I am still dealing with them.  A side effect from one of the meds.   For some reason my hemoglobin is at 8.  It should not be that low yet.  They will check tomorrow and give me a transfusion if needed. 

No more passes for the rest of the week.  They start me on more conditioning for the transplant... so I will have a 24 hour IV again... bummer.  Still I should get out on Sat.  So I can manage. 

Going through Xbox withdrawals...  Enjoying having Andy all to myself.  Missing by babies. 

No comments:

Post a Comment