Thursday, May 24, 2012

AML: Day +20 Progressing

So I haven't posted for a bit.  Ma and Andy did a few for me when I was not feeling my best.  Almost 3 weeks now since my stem cell transplant.  It has flown by.  But then I look ahead and realize were only on Day 20 of 100.  Still a long way to go.  Then again, I just realized that I have been down here for 32 days already.  There were the 2 weeks leading up to the transplant.  Makes me feel a little better.

The throat pain caused by the radiation and the Methotrexate is mostly gone.  It takes some adjustment to transition from inpatient to outpatient.   I have very little stamina and eating is difficult.  But that should improve over the upcoming days\weeks.  So far about all i can tolerate is chicken noodle soup and Carnation instant breakfast drinks.    My intake seems to be getting better each day.  But I am only managing to put down about half the protein they want me to.  They want me to get 120g of protein each day. 

I have lost 25 pounds already.   I expect to lose more.  But the nausea seems to be getting better. 

Each day I am still going to the outpatient area at the hospital.  As things improve I will be able to transfer back to the clinic and not have to go in every day.  We pass our time with errands and watching things on Netflix. 

I should get to see the kids next week finally.  It's been difficult not seeing them for this long.  We appreciate the prayers and ongoing support.  Things are progressing nicely.   I am just looking for my appitite to improve and for my energy level to get higher. 


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