My name is Jon. I have a wonderful family (4 kids, amazing wife, huge extended family). I have a great job, great friends and...cancer. I was diagnosed with acute myeloid leukemia (AML) in September 2010. On May 4th, 2012 I received a stem cell transplant at Mayo Clinic in Rochester MN.
Sunday, June 16, 2013
Final Journey
Quick and very blunt update - The leukemia has returned and is very aggressive. Jon's back at Sanford. He has fought courageously for nearly three years. Although we haven't been given any specific timelines, we have been told that soon his fight will be over. The Drs. are keeping his intense pain manageable, but the medicine makes him very sleepy. Thoughts and prayers for Andy, the kids and our parents during this difficult time. Not only is today Father's Day but it is also Jon's birthday. Thanks, Jess (Jon's sister)
Monday, June 3, 2013
AML: Quick Update
This will be short. Just an update as to how I a fairing at home.
I continue to do labs each Mon, Wed and Fri. It's just a quick trip and they call me back in if I need a transfusion. Last week I received platelets on Monday and Friday. I felt pretty dehydrated those days so I also requested hydration and so they pushed a liter of fluid at the same time.
Thursday & Friday my tank was pretty much empty. I had little energy and was getting frustrated at how poor I felt. Saturday I felt marginally better. Sunday was Mickey's (my niece) birthday. I woke up feeling pretty good and had a pretty good day. I pretty much perched myself on the couch and stayed there, but we made a full day of it.
Today I feel much better. My labs confirmed what I was thinking. My counts are beginning to recover. My white count moved up to .8, red blood up to 9.8, platelets 38 and ANC at 408. All good stuff considering where I was last week.
I was most worried about my white count recovering since it has been an issue with my latest rounds of chemo. It's still early, but to get where we're at is a very good thing.
I'm still settled in at home. Not much stamina but able to get around for the most part.
It's a good day.
I continue to do labs each Mon, Wed and Fri. It's just a quick trip and they call me back in if I need a transfusion. Last week I received platelets on Monday and Friday. I felt pretty dehydrated those days so I also requested hydration and so they pushed a liter of fluid at the same time.
Thursday & Friday my tank was pretty much empty. I had little energy and was getting frustrated at how poor I felt. Saturday I felt marginally better. Sunday was Mickey's (my niece) birthday. I woke up feeling pretty good and had a pretty good day. I pretty much perched myself on the couch and stayed there, but we made a full day of it.
Today I feel much better. My labs confirmed what I was thinking. My counts are beginning to recover. My white count moved up to .8, red blood up to 9.8, platelets 38 and ANC at 408. All good stuff considering where I was last week.
I was most worried about my white count recovering since it has been an issue with my latest rounds of chemo. It's still early, but to get where we're at is a very good thing.
I'm still settled in at home. Not much stamina but able to get around for the most part.
It's a good day.
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